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Claire Bonney

Our lovely Claire passed away on 25th December 2023. Claire was 60 years old. Claire was asleep in her bed when she died during a seizure. I, her partner, went to wake her on Christmas Day morning and found her unresponsive. The paramedics who attended said she had passed away several hours earlier. Claire first […]

William Frazer

Our wonderful William died of SUDEP on the 16th September 2021 at the age of 26. He leaves behind his loving parents Nick and Anna, brothers Henry and Luke, sister Victoria and the extended family, his friends and his dog Mojo who all love and miss him dearly. He was first diagnosed at the age […]

Fiona Joy Fleming (nee MacDonald)

Fiona passed away on 6 January 2023, three days after her 37th birthday. Fiona arrived after eight years of marriage. She filled our lives with joy, her middle name. Fiona was quick and bright, she walked at 10 months old and spoke in complete sentences before she was two years old. She was diagnosed with petit mal […]

Noah Green

Noah, our only child, passed away unexpectedly on 7th April 2023, aged 19 years.

Noah’s first seizure came just 2 months before his 17th Birthday, and despite regular reviews and increases in his medication, he struggled to get the seizures under control.

Ellen Mezzetti

On 8 February 2006, Ellen Mezzetti died in her sleep from epilepsy, aged 16. Ellen leaves behind her parents John and Lynne and two brothers Jack and Henry. They have all spent the last year coming to terms with their tragic loss. This will obviously continue throughout their lives and to their credit they’re doing […]

Johdi Russell

Johdi was a much-loved daughter, sister and friend who sadly lost her life to SUDEP, aged just 17 in 2017. Her mother, Tanya, hopes that, through research, fewer families will have to endure the pain of losing a loved one to epilepsy in the future. “Johdi experienced her first febrile seizure at just 4 months […]

Lee Johnson

On December 12th 2010, our fit and healthy son Lee, aged 24, went to bed and never woke up. The previous day he had secured a job coaching soccer to children in America. SUDEP (Sudden Unexpected Death from Epilepsy) had claimed another life.Despite being diagnosed with epilepsy at the age of 9, Lee achieved so […]

Sunny Oduyemi

Sunny’s family have set up a memorial fund to support the work of Epilepsy Research UK. Donations given in memory of Sunny will support our next research grant awards. New research offers the very real possibility of further breakthroughs in understanding the causes of epilepsy and developing new therapies to help transform the lives of […]

Toni Hodges

Toni Joanne Hodges was only 37 when she passed away on 13th September 2020 after suffering a seizure and never regaining consciousness. Her seizures, although well under control, could be triggered by excess stress. She was a bright, kind, generous, caring and loving girl, with a stunning smile that lit up every room she entered. […]

Chloe Marie Wood

Chloe died to SUDEP on 8th August 2022 at the tender age of 25, leaving behind two daughters, one aged 4 years and one aged 7 months, not to mention her absolutely devastated family. The fact that Chloe’s children now have to grow up not knowing their mother is a tragedy of immeasurable proportions. Chloe was the […]