EpiSafe project launched to create personalised care for pregnant women with epilepsy

The National Institute for Health and Care Research (NIHR) has invested over £2.7 million in research aiming to reduce maternal mortality risk and improve the care of pregnant women with epilepsy. Led by researchers at the University of Birmingham in collaboration with the Epilepsy Research Institute Shape Network PPIE group, the EpiSafe project was launched […]

In case you missed it… the Institute featured on BBC’s The One Show 

This week the Epilepsy Research Institute and our Founding Partners Young Epilepsy featured in a segment on BBC One’s The One Show, as part of International Epilepsy Month. In an interview filmed at our London office, the Institute’s Chief Executive Maxine Smeaton spoke to presenter Edith Bowman, who experienced epilepsy as a child, about the […]

Giving Tuesday: Institute Founding Funder Anna’s story

It’s Giving Tuesday, so we sat down with one of the Institute’s Founding Funders, Anna, to discuss her experience of developing epilepsy in adulthood and why she chose to support the Epilepsy Research Institute. Aged 31, I had my first seizure at 5 am in the morning on the kitchen floor. I was feeding my […]

Have your say on the research we fund

Central to the work of the Epilepsy Research Institute is a culture of advocating and actioning the research priorities of people affected by epilepsy through our Shape Network PPIE group. A key part of this is the involvement of people affected by epilepsy in our annual grant round. All researchers who express an interest in […]

10 Downing Street hosts reception celebrating Epilepsy Research Institute launch

The Epilepsy Research Institute was officially launched on Wednesday 25 October at a Downing Street reception hosted by Minister for Science, Research and Innovation, George Freeman MP. The Institute is the world’s first national research institute dedicated to epilepsy. The event brought together research leaders, industry representatives, founding partners, research programme theme leads and people […]

The Hub: A guide to getting started for researchers

In this short guide, Annee Amajd, the Institute’s Head of Research and Involvement and grantholder contact, introduces researchers to The Hub. What is The Hub? The Hub is the Epilepsy Research Institute’s online discussion portal for researchers working in epilepsy and its associated conditions. It’s where the research community can come together to discuss and […]

Introducing the Institute’s Research Programme Theme Leads

The Epilepsy Research Institute is pleased to announce the appointment of the Theme Leads driving the research strategy that will be central to the work of the Epilepsy Research Institute. The Institute’s key research and cross cutting themes are – Neurodevelopment, Disease Modification & Therapeutics, Mortality, Morbidity & Risk, Reproduction & Hormones, Capacity Building and […]

The Institute at the ILAE 2023 Annual Scientific Meeting

Researchers, clinicians and healthcare professionals working in epilepsy came together last week for the International League Against Epilepsy (ILAE) Annual Scientific Meeting. Held this year in Gateshead, the conference saw the official launch of the Epilepsy Research Institute and featured our regular Neurobiology of Epilepsy session. What is the ILAE? The ILAE is the world’s […]

Introducing the Epilepsy Research Institute: A message from our Chair

We are delighted to share the news that the Epilepsy Research Institute launched today at the International League Against Epilepsy (British Branch) Annual Scientific Meeting. The Institute will be pivotal in developing the UK epilepsy research ecosystem, which will ultimately have an impact worldwide, by increasing research investment, convening and coordinating national and international collaborations, […]

The Epilepsy Research Institute: Your questions answered

Today, to mark the launch of the Epilepsy Research Institute, we sat down with our Chief Executive, Maxine Smeaton, and asked her to respond to some of the questions we’re being asked about the Institute. What is the aim of the Epilepsy Research Institute? Our aim is for the Institute to serve as the central […]