Life with epilepsy: James’s story
Diagnosed at 25 after having his first seizure at work, James has had to learn more about his condition quickly and recognise the signs to keep himself safe. Although he’s faced many challenges, he has
Diagnosed at 25 after having his first seizure at work, James has had to learn more about his condition quickly and recognise the signs to keep himself safe. Although he’s faced many challenges, he has
Diagnosed at 13 after years of unexplained seizures, Madeline has faced complex investigations, brain surgery and the ongoing reality of drug-resistant epilepsy. She has written a book about her experiences and wants to help others
Laura wants better representation of parents of children with additional needs in identifying key areas of research. She talks about her experiences of caring for her daughter with epilepsy and her hopes for the future.
Ana says that epilepsy has affected every part of her journey through adulthood. It took her over a decade to get a diagnosis, so she wants to share her experience to help others in a
Edwina tells of her experiences of living with epilepsy and how it has affected her mental health. She calls for more research to help those who live with both epilepsy and mental health issues.
Maria tells of her epilepsy journey with her daughter. They have had to go through many different medical professions suggesting different treatments, her daughter once endured 450 seizures in 24 hours and has a profound
Chris developed epilepsy after she retired. Here she talks about her difficulties in getting a diagnosis and the right medication.
Carly and her husband Stu have completed the Great North Run 5 times, raising thousands of pounds for the Epilepsy Research Institute after research we had funded helped them to become parents, safely supporting her
Many people don’t want to be defined by their epilepsy. They live life to the full. However, when SUDEP takes their life it comes as a massive shock to their friends and family. Here, Gracie
For many families, navigating a diagnosis of epilepsy is a journey filled with uncertainty, hope, and resilience. Here, Christophe shares the emotional and medical journey of his son’s epilepsy, and his hopes for future research.