Your Stories

Iain shares about his daughter Isabelle and her story, and why supporting research is so important to them. 

Josefina says epilepsy has had a huge impact on her sleep. Josefina discusses the link between epilepsy and sleep, and how it differs for everyone. 

Rebecca joined our SHAPE NETWORK Steering Group to help develop the strategy for the network. Here, Rebecca explains why she wanted to be part of ...

Sophie, 21, took part in Dr Antonio Valentin’s study, funded by Epilepsy Research UK, to investigate if electrical brain stimulation can be used to treat ...

Due to epilepsy-related memory loss, Faustine often found early school life challenging, forgetting what she had learnt in class or taking longer to answer questions ...

Paolo lives with MELAS (Mitochondrial Encephalopathy, Lactic Acidosis and Stroke-like episodes) syndrome – a rare disorder mostly affecting the nervous system and muscles, and sometimes ...

Donna's brother Ian was a long-standing supporter of Epilepsy Research UK, taking part in countless fundraising events and raising a huge amount for research. Tragically, ...

Jared tragically lost his life to SUDEP in August 2021. In this piece, Jared's mum Jane discusses his rich and colourful life, his journey with ...

Dan is a student nurse and ex-Royal Navy medic. He was diagnosed with epilepsy three years ago at the age of 21 after experiencing two ...

Iain is a former World and UK Fly Fishing Champion and a longstanding supporter of Epilepsy Research UK. His son Eliot was diagnosed with epilepsy ...

Inspired by her son Jack who lives with epilepsy, Leah and friends Anita, Laura and Toni recently took on the 25K Broads Walk Challenge in aid of Epilepsy Research UK. We ...

Yvonne experienced absence seizures as a young child, but went on to live seizure-free from the age of nine until last year. While at home ...