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#Every1EndingEpilepsy workshop, research Reception and Epilepsy Research Institute UK announcement

We had a busy and successful day on Tuesday, with an excellent #Every1EndingEpilepsy workshop, an inspiring research Reception and an announcement from George Freeman MP, Minister of State for Science, Research & Innovation, of our plans to form the Epilepsy Research Institute UK. In case you missed anything, here’s a recap…

Through previous workshops and consultations, the Top Ten priorities of the UK Epilepsy Priority Setting Partnership (PSP) have been integrated into four cross-cutting themes which are now in development: neurodevelopment; disease modification and therapeutics; mortality and risk; and pregnancy and fertility. During this week’s Steering Group workshop at The Francis Crick Institute, researchers tested the development model by pitching their plans for each of the four themes using a ‘Shark Tank’ challenge model. This task looked at what resources and infrastructure we will need to deliver and sustain the #Every1EndingEpilepsy programme.

It was fantastic to see multidisciplinary groups of researchers come together during a productive day, further highlighting the collaborative, inclusive and unified nature of the UK epilepsy research community. But instrumental to the success of #Every1EndingEpilepsy will be people affected by epilepsy. Key patient organisations are now involved in the development of the four cross-cutting themes as PSP Champions. In the coming months, the epilepsy community will play a vital role in amplifying the #Every1EndingEpilepsy message.

We stayed on at The Francis Crick Institute for the co-hosted Epilepsy Research UK and Young Epilepsy research Reception. The event showcased the #Every1EndingEpilepsy programme, featuring inspirational talks from people affected by epilepsy and examples of the ‘PSP in Action’ presentated by Dr Tim Tierney, Dr Zelekha Seedat and Professor Gabriele Lignani.

We then heard from George Freeman MP, Minister of State for Science, Research & Innovation, who unveiled Epilepsy Research UK’s plan to establish a national research institute dedicated to radically advancing research into epilepsy – the Epilepsy Research Institute UK. The Institute will act as the delivery mechanism for #Every1EndingEpilepsy, driving strategic investment and creating a strong, vibrant and well-funded epilepsy research ecosystem. Only by coming together in a coordinated way will we be able to radically advance research, and end epilepsy. Read more about the Institute announcement here and in Epilepsy Research UK Chair Professor Matthew Walker’s Research Blog here.

It was inspiring to see charities, people affected by epilepsy and researchers united in our efforts to radically advance research into epilepsy. You can view the gallery from the evening below.

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