Today, along with our charity partners, Epilepsy Research UK is supporting International Dravet Syndrome Awareness Day.
Dravet syndrome is a rare complex form of epilepsy affecting one in every 15,000 people in the UK. As well as causing seizures, which are often treatment-resistant, Dravet syndrome encompasses intellectual disability and a spectrum of associated conditions including autism, ADHD, challenging behaviours and difficulties with speech, mobility, eating and sleep.
Epilepsy Research UK is proud to have worked with Dravet Syndrome UK (DSUK) in ensuring the UK Epilepsy Priority Setting Partnership, that determined the research priorities for epilepsy, reached people affected by Dravet syndrome. In today’s Research Blog, we share insights from Claire Eldred (Director) and Galia Wilson (Chair) into the challenges posed by Dravet syndrome. We also see how DSUK brings hope to families living with the condition through support, education and medical research.
"The findings of the project have significant implications for current practices and future research and highlighted the urgent need for increased research investment."