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Help shape research on electrical stimulation treatments

Through our Shape Network Patient and Public Involvement and Engagement (PPIE) group, the Epilepsy Research Institute is currently working with two research groups investigating electrical stimulation treatments. The researchers are designing clinical trials to test these treatments and are seeking the input of people affected by epilepsy to help ensure the trials are relevant to the epilepsy community and feasible for future participants.

What is electrical stimulation?  

Electrical stimulation is an alternative epilepsy treatment option for people that don’t respond to anti-seizure medications. Whilst some trials have been conducted, more information is needed about the long-term effectiveness of these treatments to better understand who might benefit from them.  

How can I help?  
There are two separate surveys from the different research groups which each take around 20 minutes to complete. If you’re pressed for time, you can choose to complete just one of the surveys – we’d be grateful for any input you’re able to provide. The researchers would like to hear from anyone affected by epilepsy, including those living with epilepsy, as well as partners, carers and family members of people with epilepsy. 

University College London and St George’s University of London survey 

A group of doctors and researchers in London are keen to understand your perspectives on current and future epilepsy treatments. They are designing a new study involving electrical stimulation to reduce seizures. This is also known as ‘neuromodulation’ – a technique which involves acting directly on the nervous system to affect brain activity. You can complete the survey here.  

University of Liverpool survey 

Researchers in Liverpool are designing a study to investigate the effectiveness of Vagus Nerve Stimulation (VNS) VNS is a form of epilepsy treatment which involves a pacemaker-like device called a generator (or stimulator) being connected to the left vagus nerve in the neck. The stimulator sends regular, mild pulses of electrical energy to the brain, to help calm down the irregular brain activity that leads to seizures. The researchers want to find out how effective this form of electrical stimulation is in reducing seizures in epilepsy. You can complete their survey here.  

Join the Shape Network  

To be the first to hear about opportunities like these and get the chance to be involved in all aspects of research, join our Shape Networkthe UK’s largest group of people affected by epilepsy who are interested in research. 

Through the Shape Network, you can: 

  • LEARN about the science of epilepsy 
  • PARTICIPATE in research studies 
  • SHAPE research priorities and how studies are carried out


If you would like more information about joining the network or have any questions about the electrical stimulation surveys, please get in touch with our Head of Research & Involvement, Annee 

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