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Reception held with Young Epilepsy to celebrate the promise of research

Earlier this week, the Epilepsy Research Institute and Founding Partner, Young Epilepsy, held a Reception at The Francis Crick Institute to celebrate the promise of research and the Institute’s 2024 Research Awards.

During the jam-packed programme, we heard from people affected by epilepsy, researchers, clinicians and experts in the fields who showcased the cutting edge projects being carried out and shared their hopes for where research could take us in the future. As well as hearing about the important work Young Epilepsy is carrying out, during the Institute’s segment of the programme we were thrilled to be joined by Rachel, Dr Sukhvir Wright, Dr Marios Kaliakatsos and Professor Tony Marson.

Rachel tragically lost her son Sam to FIRES (Febrile Infection Related Epilepsy Syndrome) in May 2021. FIRES is a rare and catastrophic syndrome in which seizures present suddenly following a febrile infection or virus. Rachel shared Sam’s powerful story – the story of a FIRES Superhero – during the reception, but you can also read it on our website here.

Dr Sukhvir Wright and Dr Marios Kaliakatsos, are developing a new method to study the underlying causes of FIRES and test treatments to counteract it. They will also collect information on current FIRES treatments to help her develop new guidelines. We recently caught up with Sukhvir, who discussed how she hopes her work could transform the lives of children and adults affected by FIRES in this Feature.

Professor Tony Marson provided an update on the Epilepsy Research Institute’s research programme, including the progress the themes have made and our next steps. You can find more information on the Institute’s research themes on our website or in our latest animation.

And finally, the Institute’s Chief Executive, Rosemarie Pardington, announced a record research investment of over £2 million as part of our 2024 Research Awards. Thanks to the generosity and dedication of our supporters, this is our biggest-ever annual investment. You can read more about the announcement and the projects we are funding here. And don’t forget to sign up to our webinar on Wednesday 5th June when we will be hearing more from the 2024 research awardees.

What are your hopes for future research into epilepsy?
Please join us in celebrating the promise of research this National Epilepsy Week – share your hopes for future research into epilepsy on social media with the hashtag #FutureEpilepsyResearch. (Don’t forget to tag @EpilepsyInst!) If you need some inspiration, take a look at what our guests from the Reception said below…

Stay tuned!

On Saturday, we will be sharing our next ‘Promise of Research’ story from Lisa, who will discuss why she thinks the involvement of people with lived experience of a condition is so important and her hopes for future research.

This National Epilepsy Week, please consider making a donation to the Epilepsy Research Institute so that we can continue supporting crucial research and providing hope for people affected by epilepsy. Thank you.

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