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The Only Way is Ride London-Essex 100!

Don’t be jel, be reem… bag yourself one of our charity places for RideLondon-Essex 100 TODAY.

Join #TeamERUK for the unique opportunity to ride 100 miles on traffic-free roads through the heart of London and neighbouring Essex. RideLondon-Essex 100 returns on Sunday 29th May, meaning you’ll be one of the first to take on the brand-new route while supporting vital research into epilepsy. Lycra what you hear? Sign up today.

Minimum Sponsorship: £500

More research is needed

The review of existing literature, the Patient and Public Involvement (PPI) group discussions and analysis of the economic impact of living with both conditions highlighted the paucity of research in this area, and the urgent need for more research investment. This includes:

  • Further research on long-term non-healthcare costs and outcomes
  • Key relevant economic interventions for this population remain unclear and need to be identified
  • Qualitative research involving autistic people who have epilepsy and their families
  • Research into the impact that being autistic and having epilepsy has on employment prospects

"The findings of the project have significant implications for current practices and future research and highlighted the urgent need for increased research investment."

The PPI group highlighted many considerations yet to be studied

To date, there had been no published data on the lived experience of people with both conditions. The project’s Patient and Public Involvement (PPI) group consisted of autistic people with epilepsy and caregivers of people with both conditions. This group highlighted many factors which have not yet been considered in formal studies:

  • A range of specific requirements and challenges that people with both conditions have including difficulties for autistic people during epilepsy-related care, limited knowledge of autism among epilepsy professionals and potential impact of epilepsy medicines on the perception of autism symptoms and subsequent manifestation of symptoms
  • The effects of both conditions on progress in school and career prospects. The group also reported difficulties accessing employment even when qualified for a role, and parents and caregivers are also impacted in relation to their career
  • The lack of integration of care for the two conditions was also highlighted

We still know little about the ways in which epilepsy and autism interact with one another and the impact that living with both conditions has on individuals. This report is an important step in the right direction to better understand the prevalence and incidence of epilepsy in autistic people and provides clear evidence that, to improve lives, more research investment in this important area is desperately needed.

The Autism and Epilepsy: Laying out the Evidence project was funded by Epilepsy Research UK, Autistica and Young Epilepsy. We are especially grateful to the PPI group members who contributed to the project.

You can read Dr Colin Reilly’s Research Blog on the Dossier here.

What will you get?

  • a striking, high-quality cycling jersey
  • dedicated fundraising support
  • help with promotion on social media
  • cheering packs available for your support team
  • a post-race celebratory picnic in the park
We have a limited number of places so bag yours today and avoid being as disappointed as Queen GC…
JOIN #TEAMERUK FOR RIDE LONDON-ESSEX 100 If you don’t want to get in gear, you can still get out and cheer!

You can still show your support at RideLondon-Essex 100 without getting on your bike by forming a Cheer Squad for our wonderful cyclists. Check out the route map to see if they pass through your local area. If you plan to be on the sidelines, get in touch with our Marketing & Events Manager, Becca, who will be on hand with all the cheering materials you’ll need.

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