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Shape Network PPIE Group

It's important that research is shaped by people affected by epilepsy, which is why the Epilepsy Research Institute has a dedicated Patient and Public Involvement and Engagement (PPIE) service for researchers.

The Shape Network is our PPIE group, made up of over 300 people living with epilepsy, their families and carers. Members of the Shape Network work in partnership with researchers to plan, design, manage, evaluate and disseminate research.

What impact does PPIE have on research?

We know the key to accelerating further progress in research is the involvement of people affected by epilepsy. There is growing recognition that PPIE in research leads to higher-quality studies and better outcomes. Working with the Shape Network offers researchers the chance to:

  • Connect with a large and diverse group of patients to assist with prioritisation, study design and delivery
  • Strengthen funding applications
  • Improve the relevance and quality of studies
  • Build evidence to secure further research investment
  • Ensure research is focused on the needs of people affected by epilepsy
  • Improve participant experience, trial recruitment and retention

Through the Shape Network, we can support researchers to plan and carry out PPIE activities. If you’d like to discuss this opportunity further, please email our Head of Research & Involvement, Annee Amjad, or visit the Patient and Public Involvement page on The Hub – the online discussion forum of the Epilepsy Research Institute for more information.