The Shape Network is our PPIE group, made up of over 300 people living with epilepsy, their families and carers. Members of the Shape Network work in partnership with researchers to plan, design, manage, evaluate and disseminate research.
What impact does PPIE have on research?
We know the key to accelerating further progress in research is the involvement of people affected by epilepsy. There is growing recognition that PPIE in research leads to higher-quality studies and better outcomes. Working with the Shape Network offers researchers the chance to:
Through the Shape Network, we can support researchers to plan and carry out PPIE activities. If you’d like to discuss this opportunity further, please email our Head of Research & Involvement, Annee Amjad, or visit the Patient and Public Involvement page on The Hub – the online discussion forum of the Epilepsy Research Institute for more information.