Your Stories

Diagnosed at 25 after having his first seizure at work, James has had to learn more about his condition quickly and recognise the signs to ...

Diagnosed at 13 after years of unexplained seizures, Madeline has faced complex investigations, brain surgery and the ongoing reality of drug-resistant epilepsy. She has written ...

Laura wants better representation of parents of children with additional needs in identifying key areas of research. She talks about her experiences of caring for ...

Ana says that epilepsy has affected every part of her journey through adulthood. It took her over a decade to get a diagnosis, so she ...

Edwina tells of her experiences of living with epilepsy and how it has affected her mental health. She calls for more research to help those ...

Maria tells of her epilepsy journey with her daughter. They have had to go through many different medical professions suggesting different treatments, her daughter once ...

Chris developed epilepsy after she retired. Here she talks about her difficulties in getting a diagnosis and the right medication.

Carly and her husband Stu have completed the Great North Run 5 times, raising thousands of pounds for the Epilepsy Research Institute after research we ...

Many people don't want to be defined by their epilepsy. They live life to the full. However, when SUDEP takes their life it comes as ...

For many families, navigating a diagnosis of epilepsy is a journey filled with uncertainty, hope, and resilience. Here, Christophe shares the emotional and medical journey ...

Malcolm, 69, has lived with focal epilepsy since he was two years old. His condition developed after contracting meningitis, which damaged areas of his temporal ...

Dr Abbie Fearon was diagnosed with epilepsy in 2020. Here, Abbie shares more on her journey, the importance of research and why we need to ...