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Help and support

The Epilepsy Research Institute’s mission is to radically advance research into the causes, prevention and treatment of epilepsy and associated conditions.

As a research-focussed organisation, we are unable to offer personal medical advice or support as our staff team are not medically qualified. We always recommend speaking to your epilepsy nurse specialist, doctor or neurologist about any health concerns.

For advice or guidance on living with epilepsy, the following charities may be able to help:

Epilepsy Action

www.epilepsy.org.uk

Helpline: 0808 800 5050

General information on epilepsy and confidential help, support and advice from a team of trained staff.

Young Epilepsy

www.youngepilepsy.org.uk

Text PURPLE to 85258

Information and support specifically for young people with epilepsy, their families and carers.

SUDEP Action

www.sudep.org

Helpline: 01235 772850

Support for those who have lost a loved one through epilepsy or complications associated with the condition.

Epilepsy Society

www.epilepsysociety.org.uk

Helpline: 01494 601400

Epilepsy services provider awareness campaigns, information resources and expert care.

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